Irwin Rappaport tells the ‘STORIES’ behind WeHo’s forthcoming AIDS monument


When Irwin Rappaport was a lawyer working in Washington D.C. in the early 1990s, he would visit people suffering from HIV/AIDS and help them write their wills and power of attorney. It was the early 1990s — the height of the AIDS crisis — when recovery was elusive and the disease still carried a profound stigma.

For all the good he did, Rappaport never felt as if it were enough.

“This was a defining thing in my life and the lives of so many other people,” he said. “And I just feel like my fellow board members…. we just had to do something to recognize the loss, as well as the progress that we made, and the community that we built.”

That’s how STORIES: The AIDS Monument began.

In just six days, Rappaport and his fellow boardmembers at the Foundation for the AIDS Monument will mark a milestone on the project they’ve spent more than a decade developing. Saturday’s private event for donors and public officials also commemorates the 40th anniversary of the CDC’s recognition of AIDS.

When complete, STORIES: The AIDS Monument will take visitors into a metaphysical space where words and images coalesce, and the story of the crisis emerges from the darkness. The 7,000-square-foot public art installation will stand next to West Hollywood Park and the West Hollywood Library on San Vicente Boulevard. The monument will feature hundreds of bronze pillars, or “traces” as they’ve been named, representative of those whose lives were lost to the virus. An innovative, interactive component of the tour will feature readings from The AIDS Memorial Instagram page, an anthology of personal essays about victims of HIV/AIDS . 

Click below to read WeHo Councilmember John D’Amico’s contribution to the AIDS Memorial.

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WEHOville had the chance to meet with Rappaport this week and learn about the genesis of the project, and what the future holds for it.

Irwin Rappaport stands in front of the future site of STORIES The AIDS Monument as construction is set to begin. (Photo by Brandon Garcia)

How does this monument differ from other AIDS memorials?

I think all of them are important. Ours will be the largest in WeHo. It’s 7,000 sq. ft. When you walk through the monument, there will be about 200 or more of these 15-foot bronze pillars we call traces. Thirty of those will have words inscribed on them. Those words correspond to a word wall. You’ll go through and see “isolation,” you’ll see “compassion” or “loss” or “pride” or “community” or “hope.” So it’s going to be a process of discovering the words as you walk through the monument and so that will encourage people to listen to the stories. We’re telling stories of individuals, local leaders and activists, and stories of organizations born during the height of the crisis. We’re trying to tell diverse stories. We’re trying to select stories that represent the diversity of our community. We lost a lot of white gay men, and we also lost a lot of black men, and a lot of Latinos, a lot of women, a lot of children, a lot of Asian Americans, so we’re telling diverse stories across the spectrum, across the country, especially in a time where we’re dealing with deaths from COVID. As of today I think we’ve lost 592,000 people to COVID. We lost 725,000 Americans to AIDS. So when you put it in that perspective, I think about the news coverage COVID got and is getting compared to what little we heard about AIDS.

What happens when a visitor arrives at the monument?

You’re going to get on your phone and go to our website. You have an option of choosing either the audio tour, which is a description of the monument giving you a basic history of HIV and AIDS. The alternative that you have is there will be a word wall that will show up on your phone. You click through the list and there will be all kinds of stories that you can listen to. So you might want to hear stories of compassion, or stories of community, or stories of pride, or stories of loss, so you click on those words. 

Tell us about the design of the monument.

The monument’s design is a metaphor for what we went through during the the AIDS crisis in the beginning. You didn’t know how you got it, we didn’t know how to treat it, there was confusion. There was no federal government coming to our help. So that confusion and chaos is represented in the design in the first part that you walk through, and the light pattern is irregular as well. When you get to the grid at the end — that symbolizes when the community came together, and we understood how to treat this. The placement of the traces and how they’re configured is designed to be a metaphor for the path that we followed.

How many stories do you have?

We have 36 so far and we’ll have 100 by the time we open. We have stories from ordinary people, many who have posted their stories on the AIDS Monument’s Instagram. We’ve got celebrities involved now. Whoopi Goldberg just did one. Billy Porter did a profile of Sylvester the singer. Richard Gere did a profile on Herb Ritts. Sterling K. Brown did a profile of major league baseball player Glenn Burke. Wilson Cruz did one on Pedro Zamora. It’s taking off and we’re excited about getting celebrities involved. 

Will the public be able to post their own stories?

Not at first. We’ll have a redesigned website launch in July. On the second iteration of website you’ll be able to post your own stories. What we’re doing is we’re basically pulling stories from the AIDS Memorial on Instagram and also writing profiles of certain prominent people, whether they be activists, or in the arts. I wrote one about Vito Russo, the author of The Celluloid Closet, and Robert Epstein, who made a movie about it, is going to read it.

When did the project begin?

We incorporated in 2013. But a couple of years before that, the board was coming into formation, people were working on the project, but it hadn’t actually crystallized into an actual corporation. It’s a nonprofit 501(c)3. The first chair was Jason Kennedy. I think the conception was when Jason Kennedy and Craig Dougherty spoke to John Duran and said they wanted to do this. They met with John Duran when he was on the council in the late 2000s. John suggested they meet with Ruth Tittle from Capital Drugs. And that was the nucleus of the board. It sort of grew from there.I became involved because I was on the Victory Fund Campaign Board. I was coaching the annual brunch fundraiser. I called Mark Lehman to get him to buy tickets. Like any good person who is a board member and an activist, he said Oh I’id love to go, but let me tell you what I’m doing. And that’s how he recruited me.

Irwin Rappaport points out at a feature of the future AIDS Monument to WEHOville’s Larry Block during their interview at the West Hollywood Library this past week. (Photo by Brandon Garcia)

What’s the event being held next week about?

It’s a private event because of COVID-19 and because it’s an active construction site. It’s for donors of $25,000 or above. As you see we have a lot of exciting people coming both elected officials and celebrities and activists. We have Ryan White’s mother Jeannie. We have Marianne Williamson. We have George Takei. And it’s also to commemorate the 40th anniversary OF the CDC’S first report about AIDS on June 5, 1981, based on the work of Dr. Michael Gottlieb, who is also speaking at the event on June 5. He was the one who identified this pattern among his gay male clients who were patients who contracted pneumocystis pneumonia. And so the CDC issued its first report and that’s what we’re commemorating on Saturday the 5th.

How is the project being funded?

We have raised over $5 million but we are gifting $2.43 million of that to the city and the rest has paid for our operational and administrative expenses and leaves us a reserve for future operations.

How much has the city authorized to spend? 

It’s a maximum total expenditure of $5 million inclusive of the gift.

And so the city donated the land, too? Is that considered part of the purchase price?

No, the city donated the land from the beginning. And we have always agreed that when the project was completed we we would gift it back to the city. Originally it was going to be not only designed but also built by UAP and the artist Dan Tobin. UAP decided to stop at the general design phase and the city will hire a general contractor to build it here at the park.

Who owns the license rights to the monument after it is complete?

We’ll continue to own the digital content. The copyright will be maintained by the foundation. The intellectual property will be owned by the foundation but the physical monument and the land will be owned by the city. We’ll continue to gather stories after the monument is completed and add to the collection. Because that’s our ongoing mission is to tell stories and to educate the public because there’s so many young people who have no idea what we went through.

Is the fundraising still open or is it closed?

We finished the capital campaign for the monument but we’re continuing to raise money for what we call the digital monument, which is a collection of stories and interviews, and for the education programs we want to put on for the public.

Who were the leading sponsors?

Cedars-Sinai and the City of West Hollywood. We also received grants from the State of California and the County of Los Angeles.

Is this a volunteer project?

My position is not a paid position. We have one part-time staffer and a very hardworking board.

Anything you’d like to close with?

On a personal level, I did some things to help people back in the early 90s when I was a lawyer in Washington. I would go to people’s homes and help them write their wills and powers of attorney. I never felt like I did enough, and you know, this was a defining thing in my life and the lives of so many other people. And I just feel like my fellow board members… we just had to do something to recognize the loss as well as the progress that we made, and the community that we built. I don’t think we would have gay marriage today if we hadn’t strengthened as a community. So we could pass that along to younger generations so that they know what we went through and so that people never forget.

Additional writing by Brandon Garcia

Irwin Rappaport, photographed by Brandon Garcia

The project will hold a private ceremony on June 5. Speakers will include:

  • George Takei, LGBTQ activist and legendary actor
  • Marianne Williamson, Co-Founder of Project Angel Food
  • Jeanne White-Ginder, mother of teenaged HIV/AIDS activist Ryan White
  • Jake Glaser, son of AIDS activist and child advocate Elizabeth Glaser
  • Dr. Michael Gottlieb, co-author of the CDC’s first report on HIV/AIDS
  • Robert Gonzalez Gant, producer, actor (Queer as Folk, Castle) and LGBTQ activist
  • Peter Paige, actor (Queer as Folk), director (Good Trouble) and screenwriter
  • Jewel Thais-Williams, co-founder of Minority AIDS Project and owner of the oldest Black-owned disco
  • Bamby Salcedo, President and CEO of the TransLatin@ Coalition
  • Gerald Garth, LGBTQ activist and AMAAD Institute Director of Operations
  • Sherri Lewis, AIDS activist and POZ Magazine columnist
  • Rabbi Denise Eger, Congregation Kol Ami
  • U.S. Congresswoman Maxine Waters (not yet confirmed)
  • CA Senator Ben Allen, California District 26
  • LA County Supervisor Sheila Kuehl, 3rd District
  • West Hollywood Mayor Lindsey P. Horvath
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Dan Morin
Dan Morin
3 years ago

Thirty-eight years ago this month I became a volunteer for AIDS Project Los Angeles (now APLA Health) but in December of 1983 I was hired as their first Director of Volunteers. When I began in that post, there were 100 volunteers. When I left in 1989 to assist other AIDS agencies, there were 1,000. Each and every one of them were heroes, especially in the beginning when they stepped up to the plate when even some in our own community did not want to get involved for fear of the disease, possibly losing their job or being shunned by family and friends. It was… Read more »

Foundation for The AIDS Monument
Reply to  Dan Morin

Hi, Dan. Thank you for all your work for the community and dedication to the care of people living with HIV. FAM was required to make this a private event because it is being held on City property and an active construction site. A small number of donors were invited, because FAM is hoping the event will inspire them to contribute to help fund FAM’s future programs in connection with The Monument. We’re sorry if that seems exclusionary, but making this a public event was not an option open to us. The approach we’re taking meets safety requirements while helping… Read more »

Dan Morin
Dan Morin
3 years ago

I respectfully disagree with your rationale. It smacks of elitism and exclusion. I believe you could have found a way to at least invite a small number of volunteers, especially since you’re having those $25K and above donors which would mean that you would invite a volunteer as long as they had the $25K plus to donate. This is the antithesis of what APLA and other AIDS organizations were all about as well as our own community. Now, it seemingly doesn’t matter. It truly saddens and distresses me.

Foundation for The AIDS Monument

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Steve Martin
Steve Martin
3 years ago

This looks like it will be an incredible addition to the community. AIDS hit West Hollywood as the gay community was beginning to believe that all things were possible; we were invincible and on our way to the liberated promised land. Aside from the horrific devastation it wrought it was a gut punch that opened our eyes to the realities of how little progress we had made. When we thought that the nation might respond with compassion, we soon learned otherwise; gays men’s lives did not matter, no matter what your race, social position, talent or wealth. We are disposable;… Read more »

Foundation for The AIDS Monument
Reply to  Steve Martin

Dear Steve,

Please reach out to FAM at

Your recollection is poignant and deserving of a wider audience.

3 years ago
Reply to  Steve Martin

Your description is so beautifully written that I keep coming back to read it. I was going to say how poignant it is, but I’m happy to see that I was beaten to the punch. I certainly hope you take FAM up on the offer to continue sharing your experience. Your writing is concise and lends the subject matter, a story and subject we all know so well, something fresh and compelling.

3 years ago

Finally a place in West Hollywood we can all reflect on what the happened in our generation – The AIDS crisis —it was full of so many emotions
Good luck on the groundbreaking of what will be cherished by so many

Jim Gordon
3 years ago

I would be very happy to share some thoughts. In 1985-91, I told 3800 folks at the Test Site on Highland they were Positive with no meds at first. My partner died here in my arms in WeHo 1993. I participated in 1st AIDS walk with Henry Polic 3rd (Webster TV); helped comedian Steve Moore write his HBO Special (Drop Dead Gorgeous) about him being an AIDS show personality; helped do anecdotals at the clinic for CDC in 1985-90 to firm up how HIV was transmitted; had to tell a mom her sweet 4 year old had about 3 months… Read more »

Foundation for The AIDS Monument
Reply to  Jim Gordon

Dear Dr. G,

Please reach out to FAM at

Your story is powerful.

3 years ago

Thank you I am loving this deeply.

3 years ago

This is awesome. I’m overwhelmed with emotion. I’m a survivor this brings back so many memories.

3 years ago

This is terrific.

3 years ago

Good thing this monument is being built now.The generation that was most heavily affected is going away little by little.Their stories need to be told ,so the next generations can be warned and informed.

Steve Martin
Steve Martin
3 years ago
Reply to  hifi5000

Am I wrong to think that John Duran, who really focused his efforts on building this memorial but also was one of my colleagues who was in the thick of the fight against AIDS, should have been invited to the ground breaking? Particularly as he was the first person with HIV to serve on the City Council.

Foundation for The AIDS Monument
Reply to  Steve Martin

fAM invited John Duran to the groundbreaking event, and we’ve been told that he plans to attend.

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